Monday, October 25

Today felt like a good day. When we got to the hospital this afternoon, Walker was off the jaundice lights so we got to see his sweet little face. He looked so much more like himself than he has in the last few days. I sat for a long time today just holding his hand and his head and singing to him and it felt so good.

Walker’s nurse, Ari, updated us on how his last 24-hours have gone and there weren’t really any new surprises today for the first time it felt like, so that was a relief. After his blood transfusion yesterday his hemoglobin was back up today. The bleeding from is chest tube seems to have settled down. Ari changed the dressing on his chest incision today and said there was no new blood and it looked good. His blood pressure has been a bit better. His pain seems manageable. Thank you, Jesus, for answered prayers.

Today Walker’s nurse also let me help with his care a little bit and it made me feel so good to get to do some “mom” things for him. I changed his diaper and got to clean his eyes and wipe his mouth. I know it doesn’t sound like much, but it felt like a lot.

The geneticists also came by Walker’s bed today to do some observations on him. They essentially checked him from head to toe, taking different measurements and looking at different things. The head geneticist was so kind and gentle, and I was amazed at his knowledge. They are going to run some more genetic testing over the next while as they try to pin down an exact diagnosis for Walker.

I don’t think I am ever going to stop saying thank you for your prayers. On really hard days when I feel like I just don’t have the words, it brings me so much comfort to know that others are praying the words for me. On better days, like today, I feel so grateful to see evidence of God answering prayers that have been lifted up for Walker. I pray that Walker’s story will be a beautiful display of God’s faithfulness and power to do “immeasurably more than all we ask or imagine.” (Ephesians 3:20)

💙💙💙